My Thoughts – or Here we Go Again

I was struggling with what to write about for my 3rd blog (after my helicopter ride) when I was again interrupted. I had to have an angiogram to check up on my fistula that caused the brain bleed. My fistula was gone, Praise God!!, the Dr. said that this wasn’t unusual. I come back home in good spirits and thoughts of now I just have to gain my strengh back. Then the Dr. reviewed the scan.

The Doctor found an aneurism. Oh boy, I just stepped into a whole new thing. Get a CTScan, stat. Come to York Hospital, stat. Had another MRI (did you know there are MRI’s that are like angiograms? I probably had one of those. Dr tried to fix the aneurism with embolization. Couldn’t do it. Soooo… I’ve had brain surgery. Yep, I have “railroad” tracks” up the back of my head. Aneurism was in a different place, right on the back of my head. Not a good place, if any place is good with an aneurism.

I woke up in Neuro ICU, not doing very well. The Dr. had given me Keppra, a seizure drug, as a preventative. I get it, I really do. But I don’t believe too much in preventative medication before you even know you have the thing. If I have seizures, I will talk to my Dr. about it.

Well, my husband had brain tumors, and he never really had seizures except after surgery. Keppra Rage. It even has a name. My husband wanted to kill all the doctors and nurses. I was, at least, not that bad.

I was in pain in the urinary area (it’s too complicated to explain fully) and I couldn’t make the nurses understand why I was so uncomfortable. Of course, I just got out of surgery and on pain killers. The pain killers didn’t take care of this pain. I yelled and screamed and called them all names. I was horrible. I remember that I heard a small voice that said, “you weren’t like this before.”

If you’ve read my blog from when I was helicoptered to York, you will know that I loved those guys at ICU. They were and still are my Angels. They finally did as I asked (once I explained it to them through tears) and it was such a relief.

When I was discharged, I had my son wheel me to Neuro ICU and I apologized to the nurses. Of course they didn’t want to accept an apology, I didn’t do anything wrong, but I needed to let them know that I’m not usually like that. They needed to hear that I love them, and I treated them badly. As our talk progressed, their faces had big smiles and there were a few tears in the eyes (including mine).

Nurses in the hospital deserve respect. Most of them are wonderful people with wonderful hearts. When you acknowledge that you were wrong or that what you said was hurtful, the other person can either ignore you or you may have just repaired a relationship. Say Thank You to your next service person, even if they are in a bad mood. And if you yell at someone, go back and tell them you’re sorry. Eat a bit of “crow”, be humble like the Lord has told us to be.

All of the Angels out there…

At the beginning of this month, I was made aware (quite rudely, if I must say so) of how many angels of care that the Lord has stationed out in the world. You see, I had a brain hemorrhage at the beginning of January and I’m still here to tell the tale. In fact, as I was in our local emergency room waiting for the medical helicopter (yes, we did that!), I said a prayer to the Lord and it was like this. “Lord, if you are ready to take me now, I’m ready to go. However, if you keep me here on earth, there must be a reason, so guide me through this.”

I was air-lifted to a hospital about two hours away (15 minutes by helicopter), where they had a team that could take care of me. And take care of me they did. I don’t remember too much of my first two days, but I woke up in a Neuro ICU and I was clear-headed. I could sit up, walk (very slowly) and discuss my condition with the doctors and nurses. From the moment I woke up I was ready to go home, but I had to stay at least 14 days (21 days is the norm), due to a medical standard. It’s too complicated to write here, trust me.

The angels that took care of me were just that, angels. I came across so few workers that were grumpy or discontented. Most did their jobs most excellently. They were wonderful people.

Yes, I told the Lord Jesus that I’m ready to go, and I am. But the Lord has kept me on this earth for some reason with all my faculties intact. As I was pondering this in the ICU, my thoughts turned to this blog that I started years ago and haven’t written in for 2 plus years. I was prodded to awake this blog, turn it around and, instead of focusing on me as a caregiver to my husband, make it about the people in the world who give care and how we can give care to others in our world. There are people in our lives every day that we can encourage and help. Keep a look out for them!

Giving Care

I’m now noticing that when I was in the middle of caregiving that I didn’t have much time or energy to help others. I was very selfish and drawn in on myself. I was worried about getting through each day and I didn’t worry much about my neighbor.

Now I’m trying to take this attitude and turn it around, so that I can look at others and see if I can help to meet their needs. This is so hard when all I’ve ever thought about was my needs. Yes, I extended that to my husband and my children, but never outside of that circle.

 Love the Lord your God with all your heart and with all your soul and with all your mind and with all your strength. The second is this: ‘Love your neighbor as yourself. There is no commandment greater than these.

Mark 12:30-31

As Christians we are commanded to love our God with everything that is within us and to extend that love to others. As Christians we are not only to take care of ourselves and family, but to also extend care to others. What does this look like? I’m not sure, but I know that my giving care will look different from yours. We are all called to do this. We should pray and ask what caregiving we can to today for others.

March for Life…

The March for Life was yesterday and it brings about memories of my life. I’ve been through more things then just a caregiver for my husband. As Christians, we are to care about all life and the March for Life and the Women’s March brings out that we are to care for all life.

Back in 2017, I was a part of another blog, the Lutheran Ladies Connection. This is a blog that I posted about the March for Life. We not only have to think about children losing their lives, but what about the women that get sucked into the rhetoric that abortion is OK? What happens to them in the aftermath of taking a life? In my case, I thought my life was over. I had done a horrible thing and I felt that the Lord would never love me again.

As you read this, please think about others in your life who have done horrible things. They deserve our compassion. Yes, they have sinned, but haven’t we all?

Wisdom and the Rest of the Prayer.

Whenever I hear the word wisdom, I think of King Solomon. He was supposed to have prayed for wisdom and also received it. In the context of this prayer, we are asking for wisdom to know the difference. The difference between acceptance and change, and when we should do either one.

I don’t think I’m a very wise person. In fact, I look back and some of the things that I have done are really stupid. I wonder where my brain was when I decided those things. But praying for wisdom; that’s just a step up. We are coming to the Lord and saying we don’t know what we should do and asking Him to help us. We have to be humble to ask this.

To be humble is to admit that you are not a good judge of a situation. Perhaps you are too close to the situation to determine what should happen. To be humble you need to acknowledge that you are not in control. To be humble you need to have a peace about letting God have control. To be humble to listen to the Lord and do as He tells you.

He may speak to you through the scriptures, or perhaps a good friend who you trust. Always seek counseling with others because you may be too close to the situation to make a good decision.

The rest of this prayer is about humility. Living only one day at a time; which is all the that Lord has promised us. Enjoying what is happening now; not letting the past or future ruin what joy there is in a day. Accepting any hardship, knowing that the Lord will get us though it. Doing what the Lord would have us do because blessings will always come with following the Lord.

This whole prayer is one that can help you live your life. It encompasses living in the Lord in a few sentences. Since doing this blog about the Serenity Prayer I think that I will have to take it more to heart then I’ve done in the recent past. I’ve reminded myself why I used to pray this a lot. I don’t have Joe to take care of anymore, but this prayer is too good to set aside.

Acceptance

Now that I’ve written about Serenity, I guess I have to tackle the next line in this prayer. I’ve been putting this off a bit because acceptance is really, really hard. We don’t want to accept things, the way life is. We want the power to change things to the way WE want them. Acceptance means giving up control.

This is really hard to write about. I’ve had my struggles with acceptance for years. I want to control what happens. I want the outcome of any situation to be the outcome I envisioned. Of course this is totally self-centered. It’s so hard to think that you do not have control.

But this acceptance is about the “Things I Cannot Change”. There is a lot of stuff you can’t change. If you just look around you, especially at the people around you, you cannot change them. If you look at your situation, the trials and the problems, you may find a way to change that, but in most situations you can’t.

I fought against this for years. I didn’t want to be stuck taking care of my husband. I wanted him healthy but I knew that wasn’t going to miraculously happen. Now that sounds horrible, but it was the truth. Life was so hard. I had acquaintances say to me that they “Didn’t want to be me” or “Better you than me”.

Now that hurt sometimes, but I finally found an acceptance in saying “It is what it is…” When I went to my counselor I explored this. We went over my situation and there was truly nothing I could do to change it. Oh, I could leave my husband and try to make a “new” life, but I personally couldn’t do that. I couldn’t leave him to struggle on his own, so that left me right where I was.

The bottom line of this is that it takes a while to “Accept the Things you Cannot Change”. I still struggle with this now, but in a different way. Life is always going to hand us situations that we can do nothing about. Now, I have learned to bow my head in prayer and try to put these situations in His Hands.

Walking this Journey

You may recognize the “sign-post” that I have up. It’s the stages of grief. Anyone who has been to a counselor or therapist should know the stages. I joked with my counselor that I was so acquainted with them I knew them by heart.

You see, any loss be it a job, a move, any large changes in your life will kick in with some of these stages. We who are caregivers should be very well acquainted with them, indeed. We feel the grief when our family member is diagnosed with a terminal condition. They haven’t died yet, but we are already starting down that road of denial, anger, bargaining and depression. And while we are caring for our terminal family member, even if it’s for a short time, we may “move around” from one stage to another and back again. And just because we get to acceptance doesn’t mean we’re through grieving.

The one I got stuck in more than others was depression. That one is a killer. I read once that depression is anger turned inward. We can’t just be angry at the one we’re caring for so we stuff that anger and then feel guilty for being angry in the first place. I took a mild anti-depressant while taking care of Joe. I needed it so I could focus at my work and be functional in my life. I also went to a counselor, someone who is not judgemental who could listen to all my frustrations.

We all need an outlet for our feelings. Find someone, whether it’s a counselor, therapist or just a very understanding friend, who you can talk openly to. Someone who can listen to your frustrations and anger and not let it bother them. Someone who understands. If you need to use anti-depressants to help you get through your journey, because this is a journey, not just a little side trip off the road of life, then use them.

These stages are going to be a large part of your journey. Please find someone to help you walk through it.